A Framework for Palliative Care | Let's Talk Health

IE10 and below are not supported.

Contact us for any help on browser support

A Framework for Palliative Care


This consultation is now closed. 

***********************************************

Health Canada has initiated a public consultation to collect input and ideas for the purpose of developing a framework on palliative care. This consultation will run for three months from May to July, 2018. During this time we will engage Canadians on themes like: advance care planning, person and family-centred care, access issues, special populations, health care provider training and supports, caregiver needs, and community engagement. Please bookmark this page and join us regularly. We hope that you join the discussion here, and then take it to your circle of family and friends. Palliative care will impact all of us at some point in our lives, so let’s start the conversation now.

“Access to palliative care is an important issue for many Canadians and these consultations are an important step in helping to improve Canadians’ access to services. We look forward to hearing views from across the country to help us develop a framework for palliative care in Canada.”

The Honourable Ginette Petitpas Taylor
Minister of Health

Prior to participating in this consultation, please review the Privacy Notice for more information on your privacy rights.

Health Canada has initiated a public consultation to collect input and ideas for the purpose of developing a framework on palliative care. This consultation will run for three months from May to July, 2018. During this time we will engage Canadians on themes like: advance care planning, person and family-centred care, access issues, special populations, health care provider training and supports, caregiver needs, and community engagement. Please bookmark this page and join us regularly. We hope that you join the discussion here, and then take it to your circle of family and friends. Palliative care will impact all of us at some point in our lives, so let’s start the conversation now.

“Access to palliative care is an important issue for many Canadians and these consultations are an important step in helping to improve Canadians’ access to services. We look forward to hearing views from across the country to help us develop a framework for palliative care in Canada.”

The Honourable Ginette Petitpas Taylor
Minister of Health

Prior to participating in this consultation, please review the Privacy Notice for more information on your privacy rights.

Share your palliative care story.

What went well and what could have improved the experience?

We are interested in hearing from everyone, including health care providers, people living with life-threatening illness, caregivers, family and friends, and others interested in this area.


Thank you for sharing your story, it will help to inform the development of a Framework for Palliative Care in Canada.

CLOSED: This discussion has concluded.
  • Navigating Palliative Care: A Caregiver's Perspective on What Went Wrong

    by baby, 10 months ago

    As the wife of a man with a long history of heart failure, navigating the health care system was often confusing and foreign.  This is my story, and I apologize ahead of time if it is hard to read, because it is a painful story. My husband was a good and loving man, father and grandfather, and a hard worker. I watched the illness take its toll over two decades and wondered how we would all manage his care, given his increasing hospitalizations and medical appointments. My husband and I would ask each involved doctor and specialist what we... Continue reading

  • The need for understanding and triggering a palliative approach to care

    by cklondon, 10 months ago

    As a palliative nurse, I understood how to initiate access to palliative care, but if I had not done so this story would have been very different.  This story is about my father.  He had end-stage prostate cancer, and was seeing an oncologist, a radiation oncologist, and a cardiologist as he was also having issues with his heart. (damage from the chemo and ongoing afib)  He also had a family doctor who he saw regularly.  He eventually developed vascular issues in his foot, with some gangerene noted in one toe and increased pain in the foot.  He then was referred... Continue reading

  • My husband's story

    by sandralynn, 10 months ago

    My husband, age 58, was recently hospitalized out of home community with an acute life-threatening condition that he succumbed to after 5 weeks of complex and invasive treatment.

    He was initially cared for on a unit where there was essentially one-to-one nursing as his condition required constant monitoring and intervention by both nursing staff and physicians.

    He was transferred to a "step down" unit placed at the end of a long hall and left on his own to await the nursing staff and physicians' visits. His condition was not initially deemed "palliative"; however after 3 weeks it became apparent that... Continue reading

  • A clinician's perspective from both sides

    by drhealth, 10 months ago

    I have been working in palliative care for many years and am fortunate to live in a community where access to palliative care for the most part is fantastic.  That being said, and despite being a palliative care clinician, I was never able to access palliative care services for my mother in-law as she was followed by a liver specialist who didn't believe she was an appropriate candidate.  I never was able to advocate for this before she died.  We need to get beyond the debate and stigma and ensure that every individual is automatically connected with a palliative approach... Continue reading

  • What is Palliative Care?

    by valoriem, 10 months ago

    As a palliative care provider, I tell my patients that palliative care is NOT just about end of life.  Palliative care is about understanding patient and family goals - what's important to them.  Is it about prolonging life?  At what cost?  Is it about spending quality time with family members?  Is about remaining independent as long as possible?

    The other most important piece is making sure the patients have a clear understanding of what their disease is, what their treatment options are and the realistic outcomes to expect from those treatment options.

    Once we understand what those goals are, further... Continue reading

  • 65 I'll Decide

    by 65 I'll Decide, 10 months ago

    65 I'll Decide!

    How difficult is it to discuss goals of wellness and advanced care planning, when already late in life, or when acute sickness, chronic health issues or mental frailty occupy the centre stage of the persons life?

    What if at age 65 every Canadian was obliged to start and document their first advanced care plan? What if each Canadian's wellness goals, pension age and advanced care planning we're mandated to intersect at age 65?

    How different would we grow older as individuals, if just as there are... Continue reading

  • Inadequate at best

    by FJET, 10 months ago

    Palliative care in inadequate. A friend was in need of it, but there were only four rooms in the hospital dedicated to palliative care.  If a room became available he would not be transferred because he was on the wrong floor.  The closest palliative care facility was too far away. The palliative care doctor in hospital said "If he goes into distress I will give him a cocktail of drugs from which he will not recover." Sounds like something else other than palliative care.

  • Therapy Dog visits

    by utopia52, 10 months ago

    Our yellow Lab (Madi) and I have been a pet therapy team with St John Ambulance for almost 7 years visiting nursing homes, hospitals & schools. When we go to our local hospital, we always make a point to spend time in the palliative care section (although palliative care patients could be anywhere in the hospital, the is one section primarily dedicated to that level). The reaction and acceptance of our visits is amazing. Occasionally a person may be too ill, under quarantine or just not a dog lover but those who we are able to spend time with, truly... Continue reading

  • That was Then... This is Now

    by Whatodonow?, 10 months ago

    My dad says to me, as I reach down to tie up his shoes, “Bet you didn’t think you would ever have to tie my shoes, help me to the bathroom, or sit with me by my hospital bed?”  (That was the evening when the ambulance took dad to the hospital after he had a fall in his room at the Senior home – slicing his ear open and fracturing his pelvis)

    I say, “No, dad – I always thought you and mom would be around forever and never get old.”

    My parents always were there.  “Watch the speed limit!”... Continue reading

  • A Bomb Goes Off...

    by Legion, 10 months ago

    After a two year struggle with triple-negative breast cancer, my wife - then 32 - was referred to the palliative ward at the Grey Nuns hospital in Edmonton. She had been admitted to Emergency a few days before with pleural effusion and difficulty breathing due to the many metastases in her lungs. We both knew that she would someday wind up in Unit43, but the sting of those words hit us both. The doctors were very kind, patient, and understanding. The first doc explained that the goal was not to keep her there until the end, but to relieve her... Continue reading