Canadian Pain Task Force Online Consultation

Tell your story

• I have Lupus

  by Reddog343, almost 4 years ago

  For 20 plus years I have been living with Lupus. It has affected many joints in my body. The one that never goes away is the pain in my hands.

  I have been prescribed every pain medication in the book including Fentanyl. So on top of the pain I also lived with the threat of becoming addicted. Thank goodness I was smart enough to only use Fentanyl for less than a week . T2 and T3 are becoming less and less effective.

  I have had some success with massage therapy, physio and some muscle building machines at the gym. The... Continue reading

• I'm so tired.

  by Ashaniel, almost 4 years ago

  I have endometriosis. I found out about 4 years ago. I had been having extreme pain during periods on and off for years, was even taken to the ER by ambulance once because I couldn't walk due to pain and collapse at the mall (while buying advil and pads on my way home.

  Finally got an ultrasound, found out I had an 8cm cyst on my ovary, months of follow up later I had to call an ambulance because the pain was so bad, and still had not seen a specialist.

  Had emergency surgery cyst was 10 cm at that... Continue reading

• Nobody Cares

  by bmcps, almost 4 years ago

  Please describe the pain you have experienced and/or are experiencing.

  I was diagnosed with Central Pain Syndrome in 2005. All of my left side is constantly numb. Imagine you have hit your funny bone, but the pain never goes away. Wearing clothing feels like rubbing my self with course sand paper, so I dress in loose fitting clothing made of the softest fabric. I put off breakfast. Toast hurts. When I do eat, my left side gums feel swollen. I have to sit down to type this. Now my left leg is throbbing and my backside is burning. Typing with... Continue reading

• The Loss of Dignity to Live Life Normally

  by Pharcus, almost 4 years ago

  I was diagnosed with renalcarcinoma, which is a type of kidney cancer. I was advised initially to leave it as it was a small cancer, but continued to check in to monitor its growth. Eventually, I was informed that it had grow enough that we should act. I was presented with an invasive surgery as the only option to address this, and invited to take part in a study that the surgeon was conducting. When the time came for surgery I was supposed to receive an epidural prior to surgery, but could not as they administered the blood thinner too... Continue reading

• Pain as a call to action: from patient to health care provider

  by yanagis, almost 4 years ago

  As a someone in my late twenties, i've had widespread undiagnosed, non-traumatic chronic pain (only on the right side of my body) for 12 years. I would consider myself lucky, but like many of you, I saw many different physician specialists, 8 physiotherapists, a massage therapist, 2 chiropractors, 2 osteopaths, yoga teachers, counsellors, and pedorthists. In this health care journey, I share the frustration that many of you likely have of health care providers who think they can "cure" or believe the pain to be not as bad as we make it out to be. One of the challenges in... Continue reading

• A Journey Not Sought

  by Painteacher2, almost 4 years ago

  My pain journey began about two decades ago with compression fractures in my spine that were not diagnosed as such for almost a year. I do not blame my doctor for assuming that it was soft tissue damage and not ordering x rays because I could bend and though I did not yet know it, have a very high tolerance for pain.

  When lots of physio did not improve my issues and things only seemed to get worse in terms of severe flare ups (10+ on a pain scale and no longer able to even lie down), everyone agreed that... Continue reading

• Complex Regional Pain Syndrome

  by tdykuvluanrrmetedu, almost 4 years ago

  Looks like no one has posted on CRPS yet so here goes.

  
  

  Also can whoever is moderating these comments get rid of the "This cure works!" and "Try this alternative health quackery!" posts please? That's just really frustrating noise.

  
  

  CRPS is basically part of your peripheral nervous system, after a severe injury, not healing correctly - it re-wires the autonomic nervous system top appear as though the injury never healed. Even if it does.

  
  

  So, e.g., you have an injury, or even a surgery, but instead of getting better as you heal, the pain gets worse. The peripheral nerve or... Continue reading

• terrified for my child's future

  by piper13, almost 4 years ago

  My daughter suffered spine trauma nine years ago when she was twelve that resulted in chronic neuropathy in her feet. She was paralyzed and had to relearn how to walk and did all that with a smile on her face. The resulting Chronic pain is what has caused her to lose a normal life. Most days she can't get socks or shoes on and walking isn't easy since it hurts. She can't leave the house often (no socks/shoes) therefore her world that was so full of friends, sports, school has collapsed down into the size of my home, her social... Continue reading

• Wouldn’t wish this on anyone

  by Tessa, almost 4 years ago

  I have rheumatoid arthritis, fybromyalgia, bursitis in both hips, DDD along my spine, PFS and a few oth delightful issues. My DNA suggests I don’t react to pain like most of the population so I figure what I say hurts would kill someone else. I am tired of the looks and the unbelieving sarvastic remarks if I say I can’t make it Or I can’t do it etc. My life changes from moment to moment and I do things I know I will pay for later but that’s the way things are. A small outing or visit may take me... Continue reading

• From Healthy to Living with Pain

  by SockMonkey, almost 4 years ago

  In 2001, I began my trip to Hell.