CLOSED: This discussion has concluded.

terrified for my child's future

by piper13,

My daughter suffered spine trauma nine years ago when she was twelve that resulted in chronic neuropathy in her feet. She was paralyzed and had to relearn how to walk and did all that with a smile on her face. The resulting Chronic pain is what has caused her to lose a normal life. Most days she can't get socks or shoes on and walking isn't easy since it hurts. She can't leave the house often (no socks/shoes) therefore her world that was so full of friends, sports, school has collapsed down into the size of my home, her social network now down to family and one friend. My daughter has gone from a vibrant, funny, sports minded, school loving social butterfly to a young adult who is socially awkward, closed off, sad, depressed shut-in that can't compel herself to finish her highschool diploma. I'm so terrified for her future for when I'm no longer here to be her social circle, provider, emotional support, caregiver. I'm terrified that someday she will decide that the pain is too much and life just isn't good enough to continue. I'm terrified that I can't find something to help reduce her pain, help her cope with the pain or keep her sane while she lives like this. We have been in contact via email with pain specialists in Australia, have been to a live in pain clinic in Cleveland, she is a former patient of the Pain clinic at Sick kids and is now a patient at McMaster Pain clinic. We have been through years of physio, counselling, psychiatry and still no improvement. I honestly don't no where else to turn. Once she turns 25, we will go down the medical Marijuana route to see if that gives her relief but that is 4 years away. Any ideas or new medicines or new treatments would be fantastic. We will try everything since we never know what will work.

Thank you for your interest in this consultation with the Canadian Pain Task Force towards an improved approach to better understand, prevent, and manage pain in Canada. 

The online consultation is now closed, and written submissions are no longer being accepted. 

Feedback provided from the consultation will inform a report identifying best and leading practices, potential areas for improvement, and elements of an improved approach to pain management in fall 2020. 

For more information on the Task Force, please visit the following link: https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force.html  

Keep in touch with us via email at CPTF cptfsecretariatsecretariatgtcsld@canada.ca 

Sincerely, 

Canadian Pain Task Force