CLOSED: This discussion has concluded.

Myalgic Encephalomyelitis/Fibromyalgia

My quality of life has deteriorated greatly. Prior to becoming ill I worked full time, played volleyball 2-4 nights per week, walked/ran 5 & 10 k's, did back country hiking/backpacking, cooked and baked daily, kept a tidy, clean organized home, had a healthy and active social and family life, and could afford to do whatever I wished.

I've been struggling financially, I've lost most of my friends, I'm in pain every day, I can no longer work (not even part time), my house is very dirty and messy (I can't physically do many household chores nor can I afford to hire someone), my husband can't help much as he has been working 2 jobs since I got sick. I am not physically able to do any sports or physical activities.

My emotional state has suffered greatly as I was always very independent and started working at 10 years old. To learn to rely on someone else for financial and physical support had been humiliating and heart breaking. I no longer feel like a contributing member if society.

I pray every day for a cure or even some sort of medical treatment that would allow me to get back to living. At this time I feel that I'm existing not living.



Thank you for your interest in this consultation with the Canadian Pain Task Force towards an improved approach to better understand, prevent, and manage pain in Canada. 

The online consultation is now closed, and written submissions are no longer being accepted. 

Feedback provided from the consultation will inform a report identifying best and leading practices, potential areas for improvement, and elements of an improved approach to pain management in fall 2020. 

For more information on the Task Force, please visit the following link: https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force.html  

Keep in touch with us via email at CPTF cptfsecretariatsecretariatgtcsld@canada.ca 

Sincerely, 

Canadian Pain Task Force