CLOSED: This discussion has concluded.

I have Lupus

by Reddog343,

For 20 plus years I have been living with Lupus. It has affected many joints in my body. The one that never goes away is the pain in my hands.

I have been prescribed every pain medication in the book including Fentanyl. So on top of the pain I also lived with the threat of becoming addicted. Thank goodness I was smart enough to only use Fentanyl for less than a week . T2 and T3 are becoming less and less effective.

I have had some success with massage therapy, physio and some muscle building machines at the gym. The issues with these therapies is they all cost a lot of money . I am on a fixed income sadly to say everyday living costs come before pain management.

Chronic pain is invisible and not understood by those who don’t suffer with it.

Thank you for your interest in this consultation with the Canadian Pain Task Force towards an improved approach to better understand, prevent, and manage pain in Canada. 

The online consultation is now closed, and written submissions are no longer being accepted. 

Feedback provided from the consultation will inform a report identifying best and leading practices, potential areas for improvement, and elements of an improved approach to pain management in fall 2020. 

For more information on the Task Force, please visit the following link:  

Keep in touch with us via email at CPTF 


Canadian Pain Task Force